Dr. Brent Fogel: Santa Monica, California, January 18, 2015

It was one or a combination of Fate, Destiny, Kismet, Serendipity, Chance, Luck or other that brought Dr. Fogel and I together. I had been searching for a diagnosis for my worsening mobility, balance and other bodily function impairment for some five years, at multiple facilities and with many practitioners both in and beyond Los Angeles, to no definitive avail, when my case came to the attention of Dr. Fogel, at UCLA. One thing that impressed me early on was Dr. Fogel’s reporting. Doctors write lengthy reports after seeing patients, as a key part of the patient’s medical record. I had seen many reports by doctors through the course of my quest and, while all well intentioned and laced with professional jargon, most if not all reports I had read up to this time contained inaccuracies and/or omissions. But Dr. Fogel’s reporting was on another level. It was one hundred percent accurate in detail and fully complete, like no other I had seen. This in itself won me over and gave me full confidence in him, something that I hadn’t known up till that point with other specialists. I really believed that Dr. Fogel could give me diagnosis. When there is confidence, all parties are empowered. In late 2010, after over seven years of testing and hoping, Dr. Fogel gave me a definitive diagnosis of Adult Polyglucosan Body Disease, a rare, untreatable, inexorably worsening genetic condition that affects mainly Ashkenazi Jews (Eastern European heritage). Dr. Fogel got me into a clinical trial at Baylor in Dallas and, while this didn’t pan out, it led me to connect with Susan Coddon, Dr. Jeffrey Levenson and other members of the Adult Polyglucosan Body Disease Research Foundation (www.apbdrf.org), a tight knit group of fellow sufferers and carers, mostly around my age, who together wield and radiate a powerful dynamic of experience, wisdom, concern and pro-activism. One initiative is that I now dedicate my photography exhibits to raising awareness and support for APBD. Here, I’ve invited Dr. Fogel to speak at the opening reception of my current exhibit in Santa Monica and, not surprisingly, he is a raconteur of the highest order, giving attendees a comprehendible understanding of APBD. Whether by Fate, Chance or other, I am eternally grateful to Dr. Fogel for my diagnosis and all else resulting from our connection, and for illuminating my path.

Source: Huffington Post

Get more stuff like this
in your inbox

Subscribe to our mailing list and get interesting stuff and updates to your email inbox.

Thank you for subscribing.

Something went wrong.

No Preview
These Are the Best Walking Workouts, According to Fitness Experts
This 5-Move Dumbbell Routine Builds Strength in Every Muscle Group
Running Success Can Be Contagious, Says New Study
Get Ready for Summer With This Full-Body Workout From the Tone It Up Girls
Beauty queen uses platform to bring attention to rare genetic disorder
The Inspiring Way This Fitness Blogger Flips the Script On Negative Self-Talk
School crossing guard, 91, marks 50 years of service
Fearing disease, Kenyans burn animal carcasses as drought deepens
The Salad Trend You Didn’t Know You Needed
Leonardo DiCaprio Invests in Sustainable Seafood Line
Why Bob Harper Is Eating a Mediterranean Diet Post Heart Attack
A Foolproof Way to Grow Your Own Food (Even with a Black Thumb)
No Preview
These Are the Best Walking Workouts, According to Fitness Experts
Injured Venezuela protesters face another woe: finding medicine
U.S. top court grapples over making copycat biologics available sooner
Conservative House group says ready to back latest U.S. healthcare bill